Every donation received by the EveryLife Foundation through this campaign is forwarded to a different rare disease partner organization each month and EveryLife will match donations up to $1000.
During the month of December, donations will go to the Shwachman-Diamond Syndrome Foundation.
Shwachman-Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization whose goals are to advocate and support research towards a cure and to improve medical management of symptoms, as well as to link families for emotional support and supply them with the most current medical information available. This information is provided with the expertise and cooperation of their professional medical advisory board comprised of doctors and scientists from around the world.
Rare disease patient and advocacy organizations are welcome to partner with us to raise funds using our Text-to-Donate program. Please contact us if your 501(c)3 would like to be a guest-user for one month.