EveryLife Foundation for Rare Diseases

No disease too rare merchandise

Limited edition posters, t-shirts & pens. Get yours today and help support the foundation.

Online tools to write your
Congress Member
Latest news from the
Rare Disease Congressional Caucus
www.RareDiseaseLegislativeAdvocates.org

Workshop #3: Use of Surrogate Endpoints in Rare Disease Treatment Development
Presentations available for viewing

Click to view presentations from Workshops #1 & #2

	House FDA User Fee Bill Will Unlock Lifesaving Treatments for Rare Diseases
	50 patient organizations submit letters to Senate HELP Committee requesting the inclusion of FAST Act rare disease language in PDUFA

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