Announcing the 2014 Rare Artist Contest Award Recipients!
read more
Op-Ed by Mike Astrue: FDA Returns to its Dark Ages.
read more

Dr. Kakkis to Keynote at World Orphan Drug Conference


Dr. Kakkis to Keynote at World Orphan Drug Conference Dr. Kakkis will be delivering a keynote address at this year's World Orphan Drug Conference on the subject of fostering greater orphan drug development. For more information, click the image at left.  To read letter & more>>>

About


The EveryLife Foundation for Rare Diseases is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.

Currently, there are fewer than 400 approved treatments for 7000 rare diseases affecting more than 30 million Americans. read more

Events


World Orphan Drug Conference 2014, Washington DC, April 23-25, 2014

American Society of Gene & Cell Therapy 2014 Commercialization Workshop, Washington DC, May 20th, 2014 

2014 BIO International Convention, San Diego, CA, June 23-26, 2014

EveryLife Foundation for Rare Diseases 2014 Scientific Workshop, Washington DC, September 16, 2014

read more

Programs and Initiatives



Foundation Programs



Supported Programs